Ep. 01 — Advocating for your Child's Care
In this episode we talk to Dr. Moore about how she's advocated for her child in medical spaces as well as found confidence speaking up in clinical settings.
Ep. 02 — Dealing with an INVISIBLE Illness
We talk to Mrs. Contreras about how she has come to accept her NF diagnosis and deals with the societal implications of NF.
Ep. 03 — A father and daughter’s 9-month journey with Selumetinib
In this episode, we talk to Mr. Meier about his role as an NF1 caregiver and both his and his daughter’s 9 month journey with selumetinib.
[In Production] — Setting up your child for success in school.
In this episode, we talk to Tanya Goshert-Hossain about her experience setting up an IEP for her son and
[In Production] — Is universal testing for hidden pheochromocytomas necessary?
Dr.John Doe and a panel of caregivers review a recent clinical trial exploring the necessity of systematic screening of pheochromocytomas in patients with NF1.
Ep. 01 — Advocating for your Child's Care
In this episode we talk to Dr. Moore about how she's advocated for her child in medical spaces as well as found confidence speaking up in clinical settings.
Ep. 02 — Dealing with an INVISIBLE Illness
We talk to Mrs. Contreras about how she has come to accept her NF diagnosis and deals with the societal implications of NF.
Ep. 03 — A father and daughter’s 9-month journey with Selumetinib
In this episode, we talk to Mr. Meier about his role as an NF1 caregiver and both his and his daughter’s 9 month journey with selumetinib.
[In Production] — Setting up your child for success in school.
In this episode, we talk to Tanya Goshert-Hossain about her experience setting up an IEP for her son and